FG Syndrome Family Alliance
The FG Syndrome Family Alliance was founded in 1998 and published the first edition of its newsletter, FlaGstone, in October 1999. FG syndrome, first identified in 1974, is a genetic disease that is passed through females. There are severe and mild forms of the disease, which is marked by a wide range of symptoms that vary greatly from person to person. It is usually identified with "developmental delay, reduced muscle tone, disproportionate body size, a subtle combination of minor anomalies, and gastrointestinal dysfunction, usually constipation." The Alliance was founded by a group of parents who offer support, share information, and learn more about the disease. The organization is international, with a listserve and bi-monthly newsletter sent to over 200 members. The editors of FlaGstone are Jackie Morford and her daughter Jennifer Crowl, both of whom have sons with FG syndrome. Jackie Morford was born and grew up in Ottumwa, Iowa. She has lived in Europe and Illinois but returned to Iowa City in 1987. Morford moved to Idaho in 1999.
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Abstract The newsletter of the FG Syndrome Family Alliance, edited by two Iowa City women whose sons have FG syndrome.