FlaGstone: A Publication of the FG Syndrome Family Alliance newsletters

Collection

Identifier: IWA0610

Staff Only
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Scope and Contents

The FlaGstone newsletters date from 1998 to the present and measure 2.5 linear inches. They consist mainly of a nearly complete set of FlaGstone, the newsletter printed by the FG Syndrome Family Alliance; only three issues are missing: #9 (June 2000), #26 (November 2002), and #39 (March/April 2005). There is no #41 in the collection because it was never issued. The folder of general information includes brochures about the FG Syndrome Family Alliance and medical and personal histories of Jackie Morford's son, Travis, and her grandson, Brenton, both of whom have FG syndrome.

Dates

Creation: 1998-2006

Creator

FG Syndrome Family Alliance (Organization)
Morford, Jackie (Person)
Crowl, Jennifer (Person)

Conditions Governing Access

The newsletters are open for research.

Conditions Governing Use

Copyright held by the donor has been transferred to the University of Iowa.

However, copyright status for some collection materials may be unknown. Transmission or reproduction of materials protected by U.S. Copyright Law (Title 17, U.S.C.) beyond that allowed by fair use requires the written permission of the copyright owner. Works not in the public domain cannot be commercially exploited without permission of the copyright owners. Responsibility and potential liability based on copyright infringement for any use rests exclusively and solely with the user. Users must properly acknowledge the Iowa Women’s Archives, The University of Iowa Libraries, as the source of the material. For further information, visit https://www.lib.uiowa.edu/sc/services/rights/

Biographical / Historical

The FG Syndrome Family Alliance was founded in 1998 and published the first edition of its newsletter, FlaGstone, in October 1999. FG syndrome, first identified in 1974, is a genetic disease that is passed through females. There are severe and mild forms of the disease, which is marked by a wide range of symptoms that vary greatly from person to person. It is usually identified with "developmental delay, reduced muscle tone, disproportionate body size, a subtle combination of minor anomalies, and gastrointestinal dysfunction, usually constipation."

The Alliance was founded by a group of parents who offer support, share information, and learn more about the disease. The organization is international, with a listserve and bi-monthly newsletter sent to over 200 members. The editors of FlaGstone are Jackie Morford and her daughter Jennifer Crowl, both of whom have sons with FG syndrome.

Jackie Morford was born and grew up in Ottumwa, Iowa. She has lived in Europe and Illinois but returned to Iowa City in 1987. Morford moved to Idaho in 1999.