FlaGstone: A Publication of the FG Syndrome Family Alliance newsletters
Scope and Contents
The FlaGstone newsletters date from 1998 to the present and measure 2.5 linear inches. They consist mainly of a nearly complete set of FlaGstone, the newsletter printed by the FG Syndrome Family Alliance; only three issues are missing: #9 (June 2000), #26 (November 2002), and #39 (March/April 2005). There is no #41 in the collection because it was never issued. The folder of general information includes brochures about the FG Syndrome Family Alliance and medical and personal histories of Jackie Morford's son, Travis, and her grandson, Brenton, both of whom have FG syndrome.
- FG Syndrome Family Alliance (Organization)
Conditions Governing Access
The newsletters are open for research.
Conditions Governing Use
Copyright held by the donor has been transferred to The University of Iowa.
Biographical / Historical
The FG Syndrome Family Alliance was founded in 1998 and published the first edition of its newsletter, FlaGstone, in October 1999. FG syndrome, first identified in 1974, is a genetic disease that is passed through females. There are severe and mild forms of the disease, which is marked by a wide range of symptoms that vary greatly from person to person. It is usually identified with "developmental delay, reduced muscle tone, disproportionate body size, a subtle combination of minor anomalies, and gastrointestinal dysfunction, usually constipation." The Alliance was founded by a group of parents who offer support, share information, and learn more about the disease. The organization is international, with a listserve and bi-monthly newsletter sent to over 200 members. The editors of FlaGstone are Jackie Morford and her daughter Jennifer Crowl, both of whom have sons with FG syndrome. Jackie Morford was born and grew up in Ottumwa, Iowa. She has lived in Europe and Illinois but returned to Iowa City in 1987. Morford moved to Idaho in 1999.
2.50 linear inches
Language of Materials
The newsletter of the FG Syndrome Family Alliance, edited by two Iowa City women whose sons have FG syndrome.
Method of Acquisition
The newsletters (donor no. 674) were donated by Jackie Morford in 1999 and succeeding years.
Other Descriptive Information
- Fiona McDougall, 2006; Sharon M. Lake, 2007.
- Language of description
- Script of description
- Language of description note